Lessons from Charlie Gard

After living one week short of a year, Baby Charlie Gard passed on to eternal life on July 28th. His brief life and the court battle over his treatment should move us to pray for him and his family and to reflect on the lessons it holds for the ongoing health care debate in our own country.

For those of you who are unfamiliar with the story of Charlie Gard, he was an almost one-year-old English boy with a rare genetic disorder called mitochondrial DNA depletion syndrome. The disease damaged his brain and left him unable to move his arms or legs. Over the last few months, Charlie’s parents had to appeal to a series of courts to prevent his doctors from removing him from a ventilator and to allow their child to be admitted to an experimental clinical trial in the U.S.

In Britain, if the parents of a minor or the patient himself disagrees with the doctors about treatment, the disagreement is settled in the court system. This means that the patient is at the mercy of a judge. Charlie’s mother, Connie Yates, described how this resulted in the denial of their request to bring their son home for his final days. She told Sky News, “We just want some peace with our son, no hospital, no lawyers, no courts, no media, just quality time with Charlie away from everything to say goodbye to him in the most loving way. We’ve had no control over our son’s life and no control over our son’s death.”

When Pope Francis heard about the battle over Charlie’s care, he said that he hoped his parents’ wish to “accompany and care for their child” would be respected to the end. Unfortunately, as time and the court battles went on, the damage to his body reached a point that meant the clinical trial in the U.S. was no longer a possibility. And in the end, Charlie was not allowed to go home to die. Instead, the judge ruled that he would be taken to a hospice, where he would be removed from a ventilator and subsequently pass away. Much to the dismay of his parents, this is what happened on July 28th.

As we consider the future of health care in our country and as some politicians call for a government-run system, we should not gloss over the tendency for such systems to usurp the rights of parents to determine what is in their child’s best interest, and for that matter, the rights of patients to manage their own health care.

Another danger is the demand by the government for immoral procedures, such as the Health and Human Services contraception mandate that targeted the Little Sisters of the Poor and others. All too often, one sees state-run health systems make decisions based on a drive for efficiency, a patient’s so-called “quality of life,” or along ideological lines, rather than seeking to uphold patients’ inherent dignity as a human person. In the “throwaway culture” in which we live, our hearts are hardened against caring for those with disabilities and the dying.

Reform efforts for our health system should respect the rights of patients and parents to make decisions about their own medical treatment, the conscience rights of medical professionals and the principal of subsidiarity. The story of Charlie Gard makes the consequences of doing otherwise clear.

While Congress considers repealing the Affordable Care Act, it should also keep in mind that any replacement should treat health care not as a privilege, but a right founded upon the right to life and the God-given dignity of every person. The level of care we extend to the poor and sick should not be curtailed because of their financial means, health or the decisions of hospital officials.

The plight of so many people who are sick and in need of care reminds me of Emma Lazarus’ poem “The Great Colossus,” which can be found in the pedestal of the Statue of Liberty. Lazarus was a Portuguese Sephardic Jew who spent much of her time helping poor and often sick refugees as they arrived at Ward Island near New York City. She wrote, “Give me your tired, your poor, Your huddled masses yearning to breathe free, The wretched refuse of your teeming shore. Send these, the homeless, tempest-tost to me, I lift my lamp beside the golden door!”

I pray that in the coming months our lawmakers will strive to craft legislation that places the dignity of the person at the center of health care, so that our country will continue to care for the sick and downtrodden. Let us also pray for Charlie’s family and all those who are facing medical trials. May our Father grant them peace, wisdom and fortitude.

Charlie Gard. Photo: Facebook, Charlie Gard’s Fight.

COMING UP: Father and son, deacon and priest: Deacon dads and priest sons share special bond as both serve God’s people

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The bond between a father and son is one of God’s greatest designs; however, when father and son are both called to serve the Church as deacon and priest, that bond takes on a whole new meaning. Just ask these two dads and their sons, all of whom answered the call to serve the people of God at the altar.

Deacon Michael Magee serves at Our Lady of Loreto Parish in Foxfield, while his son Father Matthew Magee has worked as the priest secretary to Archbishop Samuel J. Aquila for the past several years and will soon be moved to a new assignment as parochial vicar at St. Thomas Aquinas Parish in Boulder. Deacon Darrell Nepil serves at Our Lady of Lourdes Parish in Denver, and his son, Father John Nepil, served at several parishes within the archdiocese before his current assignment as a professor at St. John Vianney Theological Seminary.

However different their journeys may have been, all four have something in common; mainly, that far from seeing their vocations as a reward from God, they have received them as an uncommon gift of grace that has blessed their families and individual relationships with each other abundantly, knowing that God acts in different ways to help us all get to Heaven.

Interwoven journeys

Deacon Michael Magee was ordained in May 2009, at the end of Father Matt’s first year of seminary. Little did they know that God would use both of their callings to encourage each other along the journey.

Deacon Michael’s journey began when a man from his parish was ordained a deacon.

“I simply felt like God was calling me to do something more than I was doing at the present time,” he said. “I had been volunteering for a number of different things and was involved in some ministry activities and in the Knights of Columbus. And I thought the idea of being a deacon would be simply another activity for which I could volunteer.”

He didn’t know what it entailed at the time. In fact, he believed it was something a man could simply sign up for. To his surprise, the diaconate was more serious – and it required five years of formation and discernment. Yet he was so drawn to it, that he decided to do it anyway. But as he learned more about the nature of the diaconate during his formation, he became more nervous and unsure about whether God was really calling him to that vocation. 

While his doubts remained all the way up to his ordination, Deacon Michael was faithful to his studies, trusting that God would lead him in the right path. 

And God did — through the calling of his own son to the priesthood.

Deacon Michael didn’t realize that his son Matthew had paid close attention to his father’s faith journey and had found in it a light that gave him courage to discern the priesthood.

Father Matthew Magee (left) and his dad, Deacon Michael Magee (right), were both encouraging to one another as they each pursued their respective vocations. (Photo by Daniel Petty/Denver Catholic)

“Seeing my dad, as a father, growing in his relationship with the Lord was really influential for me on my own desire to follow Christ,” said Father Matt. “Looking at his courage to discern his own vocation and follow God’s plan in his life gave me the strength and courage to be open to the same thing in my life… He played a very important role, whether he knew it or not at the time, and whether I knew it or not at the time.”

On the other hand, Father Matt didn’t know that his dad was in turn encouraged by his own response to God’s calling. 

“As I went through all those doubts, I watched Matthew’s journey in seminary and listened to how he was dealing with that in his life. And, as he just articulated very well, I also saw those same qualities in him,” Deacon Michael said. “Seeing a young man in his 20s willing to consider following God for the rest of his life also gave me the courage to continue on in my own journey, to see it through.”

God’s way of uplifting them in their vocations through each other’s journey is something they are very grateful for. 

This unusual grace impacted Father Matt during his first Mass, when his dad, as deacon, approached him before the Gospel reading and asked for the traditional blessing by calling him “father.”

“It was a really special moment for me. He’s certainly my biological father and raised me. But then there’s something different when we’re at the altar in a clerical capacity — there’s a strange reversal of roles when we’re giving spiritual nourishment to the people — a father asks the new father for the blessing,” he said.

In both of their vocations, Deacon Michael and Father Matt see God’s Providence and the unique plan he has for all of us.

“We all have a vocation, even if it’s something we may not expect,” Deacon Michael concluded. “You may feel anxiety or worry about what it’s going to look like, but trust in God. He will take care of things as he always does.”

A bribe for Heaven

For Deacon Darell and Father John Nepil, the journey was different, but not any less providential.

While he grew up Catholic, Father John wasn’t interested in setting foot on any Church activity during his teenage years. His saving grace was perhaps what many parents have to do to get their teenagers to Church: bribe them.

“His mom and I basically bribed him to go to the Steubenville of the Rockies Conference,” Deacon Darell said with a laugh. “He didn’t want to go, but we’d heard so many good things about it, that we said, ‘We’re going to make this happen, whatever it takes.’”

So the Nepils came up with a creative idea.

“He owed me some money for a uniform that he had needed for a job in the summer. So, I said, ‘Listen, if you go to the Steubenville of the Rockies Conference, I’ll forgive your debt. And he did, he and his brother went. And John especially came back a different boy. He literally was converted with a lightning bolt at that retreat.”

To this day, Father John marks his conversion to Christ from the summer before his senior year in high school when he attended that conference. 

As it happens with stories worth telling, the details of how much money he owed his father have varied over the years, and it’s a matter of debate among them, but Father John remembers it was close to $500.

“That’s subject to each one,” Father John said laughingly. “But what matters is that they offered to forgive my debt if I went to this retreat – it was money well spent.”

Besides this important event, Father John said that his dad influenced him in many ways by the simple fact of who he was as a father.

“My dad’s faith and moral character were a rock for me during some difficult teenage years,” he said. “He’s a great example of a man who was always faithful and lived a really outstanding moral life, but then as he deepened in love with Christ, he decided to give of himself in a more profound service.”

Father John Nepil (left) and Deacon Darrell Nepil (right) both had rather roundabout ways to their respective vocations, but they both say serving God’s people together as brothers in Holy Orders is a great joy. (Photo provided)

Besides his desire to serve and follow God, the seed that would eventually lead Deacon Darell to the diaconate was planted by a coworker, who would also take holy orders: Deacon Joe Donohoe.

“One day he said to me, ‘You should be a deacon.’ And, of course, I laughed at him and said, ‘I don’t have time for that. My life is too busy.’ But it only took him to suggest it for the idea to keep coming back to my head, and God kept nudging me. Eventually I decided I really wanted to do that,” Deacon Darell said.

The ability to share at the altar during the Mass has deepened the natural relationship of father and son and given Deacon Darell and Father John new opportunities to grow closer to God. 

One of the most meaningful times came when Deacon Darell had a massive stroke in 2018. While he was in the hospital, Father John was able to visit and celebrate Mass at his bed and pray the rosary with him every day, as he had come back from Rome and was working on his dissertation.

“It was probably the most privileged and intimate time I’ve ever had with my father,” Father John said. “It was an amazing gift that really changed our relationship.”

“I feel like that’s a huge reason why I healed and why I am here today,” Deacon Darell added.

“It’s a real gift to have my dad as a deacon and a brother. It’s a tremendous honor. It’s one of the great joys of my life.” Father John concluded. “That’s really what has bonded our relationship together: the sheer desire to serve Jesus, especially in holy orders.”